
Chronic Illness and Children
No. 19; Updated March 2026
Any child who is diagnosed with a serious and chronic medical illness is at greater risk for developing emotional problems. Unlike a child who has a temporary medical condition such as the flu, the child with a chronic illness must cope with a disease that lasts a long time, usually more than one year, and limits their everyday activities. This can be very hard for children, just like it is for adults and family members.
What are Common Reactions for the Child or Teenager with a Chronic Illness?
There can be a wide range of reactions. The young child, unable to understand why the sickness occurred, may assume it is a punishment for being "bad." He or she may become angry with parents and doctors for not being able to cure the illness. The child may react strongly against pampering, teasing, or other attention because they highlight his or her differences from other healthy children. Uncomfortable medical treatments and restrictions in diet and activity may make the child unhappy and withdrawn.
Children and adolescents living with a chronic illness need frequent physician visits. They also may need different schedules for school or other activities. A decrease in school attendance may cause problems, including avoidance or refusal to attend school later. This can increase the child's loneliness and feeling of being different from other youth.
A teenager with a long-term illness may feel pulled in opposite directions. On the one hand, he or she knows they must take care of the physical problem, requiring dependence on parents and doctors. On the other hand, the adolescent wants to become independent and join his or her friends in various activities. When a teenager with a long-term illness tries to decrease or stop taking the prescribed medication without consulting his or her physician, this may reflect a normal adolescent desire to control one's own body.
Other Considerations and Ways to Help
It is important for parents to help a child maintain as normal a routine as possible. They should respond not only to the child's illness, but to the child's strengths. Child and adolescent psychiatrists know that if isolated or overprotected, the child may not learn to socialize or may have difficulty separating from parents when it is time to be involved in school or other activities outside the home. How can parents help? The following is a list of suggestions to consider for the child struggling with chronic physical illness:
Help your child to be in contact with others who have successfully adjusted to living with a chronic illness. In their prolonged periods of hospitalization and/or rest at home, children may develop excellence in a hobby or a special talent such as art, model airplanes, or a foreign language. Help your child learn as much about their illness as possible. Such activities are emotionally healthy and should be encouraged.
Parents may withhold information because they don't want their children to worry. However, it is important for parents of even young children to help by providing age-appropriate information about the disease, prognosis, and the reason why treatments are important to complete.
Children with long-term illnesses are often treated by a team of medical special¬ists. This team often includes a child and adolescent psychiatrist, who can help the child and family identify and overcome problems resulting from the burden of chronic medical illness. The psychiatrist can help families and their children understand the impact on the family of coping with multiple life changes imposed by the illness and develop emotionally healthy ways of living with the disease and its effects.